‘I wasn’t prepared, but I took action’

Exciting day for Isabel Gemio. This Friday, the journalist attended the 15th edition of Sweet Smilesan event organized by the Migueláñez company to raise money with the sole purpose of helping and supporting social causes and those most in need, as is the case of the Foundation that bears the journalist’s name and which this year will be the beneficiary of this collection, which will run until January 6, 2025, and whose funds will be used to finance scientific research projects on rare diseases, improve their treatments and offer direct support to those affected and their families.

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At around 12:30 p.m., Isabel Gemio arrived at Fernández de la Hoz Street, located in the center of Madrid, where she expressed her enormous happiness for this long-awaited collaboration between her Foundation and Migueláñez. Both the journalist and Onísimo Migueláñez, president of the confectionery company, have shown their joy in working hand in hand, since there has been a “mutual admiration for years.” In addition, the television and radio presenter has also said that they are going to a public research call so that groups and researchers from all over Spain can present themselves. During the event, this year’s action spot was also presented, starring a boy named Dario who suffers from fibrodysplasia ossificans progressiva (FOP), a rare genetic disease that affects connective tissue, severely limiting mobility.

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Isabel Gemio has spoken to the media who have traveled to the event about his sons, Diego (27) and Gustavo (24), being precisely the oldest the origin of its foundation since he suffers from Duchenne muscular dystrophyone of those diseases considered rare. “I do everything I can. The Isabel Gemio Foundation is for long-term research, for other families, for everyone, not only for my son, but for many other children. Luckily, I have these speakers that are you to give a voice to rare diseases. If life has given me this opportunity, I now want to give back to society, to the public, all the love it has given me, which is a lot. Life has put me in a place I never thought of, in. which no one is ever prepared. I was not prepared, but when I reacted, I took action and do what I can,” the journalist explained.

In fact, just as He told us at HELLO! The journalist herself, her son’s diagnosis was a very hard blow in her life: “When I found out, I didn’t face it. I was surviving. I was like a zombie for a long time. It took me years to come to terms with it. Imagine, it took me ten years to organize and launch the foundation. Well, I think it took me ten years to come to terms with it. When I did, I assumed and accepted that it was what it was, so I asked myself what I could do. And the foundation seemed like a good initiative. Assimilating a diagnosis of these characteristics takes a long time because it is an incurable disease that has no treatment in the world. message. For any young couple, for mothers, for fathers, for grandparents who have a child or grandchild with a diagnosis of these characteristics, let them know that science will most likely arrive in time for them, that Therefore, support research into these pathologies because it is essential to find a treatment. My son is already totally dependent since he was 11 or 12 years old. Today he needs help for absolutely everything, dressing him, showering him. , to eat. He can still drive his electric chair and operate his computer mouse. But he needs help for everything. “.

For this occasion, Isabel Gemio has opted for an elegant formal look consisting of a suit with shorts and a blue houndstooth blazer, which she has combined with a pink silk top. As for footwear, she has chosen cowboy-style boots with beige and pastel tones. The one who was the presenter of the program I give you my word between 2004 and 2017 for Onda Cero, she has posed in the photocall with little Darío, the protagonist of the spot, his family and Onesimo Migueláñez, who has explained what it is like to work with the journalist in this charitable work: “We are two people committed to the fight , and We firmly believe in the importance of supporting those who suffer from these types of diseases. “These children need us, and in a world like this, the most important thing is to reach out to those who need it, especially those who face illness, whatever its form.”

During the event, Isabel Gemio and the rest of the attendees experienced a very emotional moment, as they remembered Mario Migueláñez, general director of the company, who died in an accident in 2016. His son, Onesimo, wanted to remember that his father was the driving force behind this solitary initiative and he wanted to continue his legacy and his spirit of solidarity. The funds raised through clicks on the viral video that It will be available on its website, with which 5 cents will be raised for each click that will go directly to financing scientific research projects on rare diseases and promoting the training of professionals and researchers in the field.